|My sleeping arrangements for the night! Brrr it was cold!|
1 year since right mastectomy
Tuesday was the one year anniversary of my first official day out of work on disability as well as my right mastectomy. I had no reconstruction done at the time and we only removed the breast that had the cancer in it. I had to wait until after I had Harkin, healed and completed chemo before I could have the prophylactic mastectomy in July with the double reconstruction. I am still getting expanded every week with the plastic surgeon Dr. Cohen. I will have two more surgeries one to swap out the expanders for the actual implants and another for nipple reconstruction and tattooing. Yes when you have a mastectomy they take everything! This is to ensure you get clear margins and remove all the cancer and hope to stop it from spreading. It is amazing how many surgeries I have had in just 12 months. It is amazing what a body can go through in this time.
Trip to the Pediatric ER
On Thursday when I was at the plastic surgeon I got a call from the daycare that poor Harkin had not kept any food down or in her with getting sick. I ran down to pick her up and something seemed off. I brought her to Hackensack University Medical Center and she was seen in the Pediatric ER. She was suffering from low blood sugar and dehydration. They had to do an iv provide her fluids, zofran for nausea and sugar. They took blood and ran a panel and found nothing other then being dehydrated and low blood sugar. Thankfully her sugar level came back up and she was re-hydrated by the fluids. What a scary experience to have to bring your baby to. She is finally on the mend poor baby!
|A selfie of a baby starting to feel better. Great distraction tactic for kids by the way!|
Dr. Oz show
This week on October 28th my picture along with a few other survivors of breast cancer will be shared during the show. http://www.doctoroz.com/
Monday is the nephrologist
I am so nervous as on Monday, October 27 I have an appointment at Columbia Presbyterian to meet with my nephrologist Dr. Appel. I had seen him right after Harkin was born and everything seemed well but these days every time I go to the doctor I feel I am waiting for the other shoe to drop. I have been seeing Dr. Appel for years now as I was diagnosed when I was seven with FSGS a chronic kidney disease. I originally was treated through CHOPS Children's Hospital of Philadelphia by Dr. Kaplan. Dr. Kaplan is still in practice but unfortunately when I turned 19 he advised I needed to see an adult nephrologist. He hooked me up with Dr. Appel and he has been a wonderful and understanding doctor ever since. Here is to hoping all is going well with my kidney's.
Survivors guilt is continuing...
Another Mom is my cancer mom’s group got really bad news that she has days left to live. She went into the hospital for uncontrolled vomiting and the cancer spread to her spinal fluid and brain. She has four small children and a loving husband. Cancer is so unfair and it sucks so bad these beautiful people and mom's have to suffer so much and then leave their families behind. I have a hard time every time I hear a story like this because I am doing okay and someone else is not. It's just not fair and it makes my heart hurt.
I am still taking things on day at a time and I am starting to formulate what I have learned from this journey and I am going to be looking into starting a charity that will allow me to give back to Mom's that are pregnant with cancer. Not just breast cancer because cancer does not discriminate and everyone needs help especially those who have been diagnosed while pregnant there is a battle going on for two!